Hi, my little boy is a TOF and also has problems with his wrists and thumbs. He is 9 months old now and we went for our second dilatation today which seems to have gone well. After a big scare in May I am a bit rubbish with getting him onto lumpier food but he does eat loads and is getting there.
Hi...my daughter hasnt got TOF but I myself was born with it and Oesophageal Atresia so it was an agonising wait through the pregnancy to find out if she did...any questions welcome!
Hi Suzanne,
I was interested to read your posting about waiting to find out if your daughter had a TOF/OA. I wasn't aware the conditions could be inherited. I thought these were problems associated with the development of the baby in the womb. If you have any nuggets of info or experience to pass on in this respect I would be really grateful.
Also, I would really be interested in finding out more about what it's like growing up having had a TOF and OA. I haven't come across anyone who's a 'grown up' TOF person, and would love to hear from you if you've got any experience's that will help me help my son as he grows up - if that makes sense!
Like Suzanne, my little boy was born with a TOF and OA. He's doing brilliantly, although keeping us on our toes regarding his eating lumpy foods, and has a barky cough that attracts a lot of comments such as 'that's a nasty cough'/'hope he gets better soon' when we're out and about! However, he does surprise us enormously sometimes, usually at moments when we're least expecting it, like last night when he chose to eat my dinner of salmon, steamed carrot and baked potato - not in any pureed form or mashed whatsoever! - over his 'baby' food.
Hi...my daughter hasnt got TOF but I myself was born with it and Oesophageal Atresia so it was an agonising wait through the pregnancy to find out if she did...any questions welcome!
Hi one of my twins is a TOF. Been weaning for a month now.