hey all!
i was born with a cleft lip and palate, and was worried about my little one perhaps inheriting it from me. They told me it was highly unlikely as not normally hereditary (but just read rjbailey's reply, so maybe that was wrong info they gave me!!) but they arranged for a specialised consultant to do the 20 week scan instead of the normal sonographers. anyway, he's all fine - but if any of you want to have a chat about the mixed emotions that go through your mind, and even perhaps from a different perspective on what it's like to live with the 'condition' and effects of the op, bearing in mind mine took place a long time ago - give me a shout. x
do you know if it can be inherited? I'm 24 weeks pregnant and my babys dad was born with the cleft lip where the gaps at both sides and a cleft palate. I've had to have an extra scan to check his face but they couldn't find anything but i know it could still be a possiblity
Hi Princessldf! As far as I can remember from the information given to me 90% of babies born with a cleft lip and or palette are from heridetary cases, where as 10% is cause unknown. There is no one in my family that has a cleft lip so it was cause unknown for my daughter but just because it is in your family doesnt necessarily mean they will have one. The best website to look at for more information is www.clapa.com (cleft lip and palette association) they have really useful information on there about cleft lips and palettes and a forum where you can get in touch with other parents. Hope this helps!!
Hi Jaimelalley! As you can see in the introduction, my daughter was born with a cleft lip, I had no idea until I gave birth so it was a big shock for me! With time until the birth it'll give you a chance to research on surgery, aftercare etc, speak to other parents that have been through the same situation. I will try to get some pre op and post op pics put up on here, without sounding corny its amazing what they can do with surgery. Zoe was only in hospital for a day and the operation itself only lasts for a couple of hours. It sounds weird but it's almost strange seeing them for the first time after surgery, you get used to the way they look and couldnt imagine them looking any other way so my advice would be to take lots of photos! I loved it when Zoe smiled as the gap in her lip made her smile look even bigger! Anyway if there are any questions you have feel free to ask, it can be very scary watching your 3 month old baby go in for surgery but babies are very resiliant and bounce back very quickly and there are loads of after care groups that have summer partys, easter egg hunts etc so you wont be short of people to talk to, and you'll be welcome before the baby is born! hope this has helped slightly!!!
HEYA, I HAVE A 16 WEEK OLD BABY BOY AND HE WAS BORN WITH A CLEFT PALLETE. PLUS A MILD DOSE OF TREACHER COLLINS. BECAUSE OF HIS CLEFT PALLETE HE HAS A SPEACIL BOTTLE WHICH A HAVE TO SQUEEZE WHEN HE SUCKS. WITH HIM HAVING TREACHER COLLINS HE HAS A SMALL JAWLINE SO HE IS NOT GOING TO GET HIS PALLET OPERATED ON UNTIL HES ROUND ABOUT 12 MONTHS OLD. I DID NOT KNOW ABOUT THIS WHILST I WAS PREGNANT SO IT WAS A BIG SHOCK TO ME ALSO. BUT NOW ME AND KEENAN HAVE REALLY BONDED. I LOVE HIM SO SO MUCH. TO ME HE IS JUST A NORMAL LITTLE BABY. WRITE BACK PLEASE.X
do you know if it can be inherited? I'm 24 weeks pregnant and my babys dad was born with the cleft lip where the gaps at both sides and a cleft palate. I've had to have an extra scan to check his face but they couldn't find anything but i know it could still be a possiblity
We had a our 20 week scan last week where my little boy has been diagnosed with a cleft lip and palette. The last week has been a roller coaster of emotions but we are feeling much more positive after speaking to the experts and another family who have already been through it.
I would love to chat with parents who are going through this too!
Hi Jaimelalley! As you can see in the introduction, my daughter was born with a cleft lip, I had no idea until I gave birth so it was a big shock for me! With time until the birth it'll give you a chance to research on surgery, aftercare etc, speak to other parents that have been through the same situation. I will try to get some pre op and post op pics put up on here, without sounding corny its amazing what they can do with surgery. Zoe was only in hospital for a day and the operation itself only lasts for a couple of hours. It sounds weird but it's almost strange seeing them for the first time after surgery, you get used to the way they look and couldnt imagine them looking any other way so my advice would be to take lots of photos! I loved it when Zoe smiled as the gap in her lip made her smile look even bigger! Anyway if there are any questions you have feel free to ask, it can be very scary watching your 3 month old baby go in for surgery but babies are very resiliant and bounce back very quickly and there are loads of after care groups that have summer partys, easter egg hunts etc so you wont be short of people to talk to, and you'll be welcome before the baby is born! hope this has helped slightly!!!