fetal heart defectsCreated By imaguest on 22 June 2011

Hello all.

Firsly, although this is a group im sure no one wants to be a part of, its nice to see these success stories and have some where to look if I need advice.

My daughter, Isabelle was in intensive care for an infection shortly after she was born when a routine heart scan discovered she has a heart condition called truncus arteriosus. A shock to us to say the least! She underwent open heart surgery at 9 days old which I'm pleased to say was successful and she recovered extremely quickly. I couldn't be more proud of her! She will need follow up replacement surgerys throughout her life.

Whilth the hospital and its staff did an incredible job looking after her, we are left with little information about how this condition will affect her later in life (other than more ops).

Apart from a scar and follow up appointments she is like any other new baby, happy, healthy and incredibly beautiful :)

Hannah

Hi,
My husband (also Thomas) has lots of heart problems from before he was born. He's just celebrated his 30th and is upstairs playing with our healthy little girl right now. Miracles can happen, and they keep on happening.
Best of luck and all strength to you.

lunarhine.blogspot.com

Hi G and Em

I am also a mummy to a chd baby. Jessica was born in Jnauary and we had no idea that she had any problems, so it was a big suprise when we found out that she had a large whole in her heart which needed to be operated on at 3 months old. Luckily though she's a very tough little girl and is doing well after her op. It is all very scary when youre going through but I am sure Thomas Jack will do brilliantly.

Heartline were very nice to me and very helful.

take care and try not to worry to much

Alison :)

I have been sent a link to a website called heartline, not to send you away from gurgle at all, but its for parents with children having CHD, ive only been on it for a few days but its full of information!

http://www.heartline.org.uk/forums/index.php

Hi G.

Thanks for your reply. Its always good to hear the positive outcomes and Im sure Thomas will be one of them too.

He has TGA with VSD Transposition of the great arteries and a hole in the muscle wall between the chambers, hell have to have an op just after hes born, to performa switch on the arteries and repair the hole, hopefully in one oeration if hes strong enough, but otherwise in ops 6 months apart. I reckon hes a strong fighter anyway, going off the kicks i get daily! lol

I have been looking at other CHD children websites on the net and trying to find out as much info as i can, my OH tells me not to as i get upset, but theres no pretending, we know hell have problems and we know its gonna be hard at first so i jsut want to be prepared and know what to expect.

Ive added you as a friend

Em x